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Status Updates (Archive 2012)

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life goes on 🙂 update August 11, 2012

‎Saturday, ‎August ‎11, ‎2012, ‏‎1:38:16 PM | smolby@gmail.com (Sean Molby)                        

So I guess I forgot to post about   T’s dental, cardiology and orthopedics appts…my brain has been functioning   at low speed lately so bare with, LOLDental: T’s teeth look great…no   damage from all the different meds he took for so long or the sweeties he   lived off of for nearly a year J his dentist does not want us weaning the   binky till after surgery-go figure, she was extremely pleased with how things   looked and T actually cooperated (mostly) Cardiology: very good visit and T   cooperated for EVERYTHING: weight, height, O2 & BP check, exam, EKG AND   his ECHO- he is usually a turkey for at least one of these… anyways   everything looks GREAT!!! The Dr.’s had a long debate over T and to no   surprise; they agreed that T is following his own path and not the usual,   again!!! LOL- normally the requirement for the 3rd stage surgery is once they   get to 15 kg (33 lbs) well T is there BUT he is there earlier than most   kids…usually heart kiddos have issues with gaining weight, but T is SOLID   muscle, the kid is like a MAC truck, I swear he is made from titanium LOL which   isn’t much of a surprise as he is such a super man to begin with!!! J Anyways   T is doing SO AMAZING; but they can’t go off the normal guidelines, they need   to base his surgery time on his entire size not just his weight. As T is only   2 and weighs more than most 3-4 yr olds with HLHS but is the average size of   a 2 year old they are a bit hesitant to chance that he isn’t quite big enough   yet… he did say that their records show that T has the past 2 years had a   HUGE growth spurt between June and October and he figures he may follow that   trend again this year but even if he grew an entire foot they are going to   wait. So after lengthy discussion it was decided that we will be postponing   surgery till spring… this will give T a chance for his left lung vessels to   grow in hopes of reducing his risk of developing severe pleural effusions and   chylothorax, a common complication after the Fontan. Him having bigger and   stronger lung vessels can help reduce this risk for several reasons, of which   I won’t bore you with J

T has his next follow up the 1st   week of Feb 2013 and at that appt we will set a surgery date for sometime in   Feb., March, or April, or very possibly later… They refuse to do his   surgery this fall even though they are confident size wise he will be ready.   They won’t risk it during the high RSV/Flu season; otherwise he would   probably be getting it in October. Kaine said he wasn’t willing to risk T’s   health since he knows he will be fine till early next year. His surgery date   will be based on several factors: how many RSV/flu hospitalizations there   have been by Feb, on whether Dr. O’Brien will want another cath, which Dr.   Kaine is advising against-he doesn’t see the need as his cath in May went so   well and everything looked as perfect as it can-, on T’s health over the   winter, and our preference as well- right now we are trying to decide if we   want to do it before T’s 3rd bday or after- not really sure if   there is a “better time” to hand your little boy over so they can open his   chest and stop his heart but regardless it isn’t a choice we have the luxury   of refusing.. No matter when we decide it will be hard!

Orthopedics: T was evaluated and   instead of jumping straight into leg braces they are going to start with   inserts in hopes that it will correct T issues..; for those that didn’t know,   even though T can walk, run, jump etc he has a severe turning in his feet- on   his right foot he almost walks on the side of his foot. It doesn’t seem to   bother him but to me it looks extremely painful. There is a slight chance he   could grow out of it but we didn’t feel it was something we should chance and   we are also concerned of the long term effect it could have on his ankles,   legs, and especially his knees! His inserts will be here in about 2 ½ weeks   and then he will be stuck in shoes ALL day- but I don’t see a problem as he   LOVES to have his shoes on.

Overall things are going well. T   is doing amazing… we also had a big debate over starting to take T to church…   luckily we have an amazing church and some volunteers (that we haven’t met   yet) that are going to help with T. There will be some training but we will   have someone with T that is dedicated just to him during any service-so they   can monitor him and the health of the children around him and remove him from   any possible health risk and ease our minds about exposure!! This will give   Sean and I a chance to attend together services together instead of   alternately weekly… kind of nervous but excited cause this is a first step to   so many more for us… as scared as I am for his surgery in a way I am anxious   because I know that after so many things will be changing for the better!!!

Thanks for continued prayers and I   hope everyone is doing wonderfully!!

~ Christy

June 8- the real story

‎Friday, ‎June ‎08, ‎2012, ‏‎6:00:26 PM | smolby@gmail.com (Sean Molby)


First off, I would like to say thank you for everyone who has been praying   for us and for all who have been continually supporting Tristan through your   prayers. It really does mean so much to our family.
After being recently informed of   some things I feel the need to clear the air a bit, even if only for my own   piece of mind…Very few people know of the real   struggles we have been facing over the past two years. Tristan has been the   most prominent but not by far our only struggle.

To begin, let me apologize for   anyone who feels I have not been the optimal friend or family member lately…   I truly do not mean to be rude or appear self involved. But to explain let me   start by stating the obvious-In April of 2010 our infant son was born with   HALF A HEART, not to be mistaken or confused with a premature baby (although   I understand and agree that is truly devastating and scary in its own right,   but you eventually take your child home-and most often they go home healthy),   or having a child with a scraped knee, a broken bone, or even one with a   really bad cold/flu -my child has half a heart, he will always have only half   a heart-until he needs a transplant and then he will have a transplanted   heart! Unless your child is diagnosed with something that will be life   threatening for the REST of their lives, please don’t compare what we are   going through. So with that explanation I apologize for not taking the time   to make a call to see how anyone’s day is going, again I am not intentionally   being discourteous, but when Tristan was brought home I spent nearly every   waking (and often even sleeping) hour taking care of him, in addition to   taking care of Ella, Bri, and our home..In his first few months of life I had   to not only monitor him every minute but he had to be fed hourly; he also   required medicine to be administered every 4 hrs. Then after his second heart   surgery and the complications that arose after, I had to do meds every 2   hours plus check vitals along with everything else. Now after his third heart   surgery I will admit his medication needs dwindled drastically but then I had   to focus on his therapy. Cause at 7 ½ months he was only as advanced as a   week old infant-literally. Not only did he get therapy daily (occupational   2x, physical 2x, speech, and nutrition)-and still does; but I did therapy   myself with him three-four times a day for at least 30 minutes a day   EVERYDAY; on top of that, to prevent yet another surgery, I spoon fed him 40   ounces of formula a day (to break it down – that’s equivalent to FIVE 8 oz   glasses of milk, that had to be spooned into his mouth for months until he   was able to finally start eating baby foods and we eventually taught him to   drink from a straw, he never took a bottle. To accomplish this I had to feed   him almost every 30 min and it took about 15 minutes to get him to take the   amount of fluids he needed-so as far as how my time was spent, you do the   math. At night, instead of sleeping, I would monitor & watch him sleep   and constantly get up just to make sure he was still breathing. I maybe got   3-4 hours of broken sleep a night for well over a year. So to be honest after   being eternally exhausted and spending what time I wasn’t taking care of   Tristan with either Ella or Bri or picking up the house (if I had enough   energy to pick up) I really didn’t have time to make a quick call to see how   you were doing. And frankly, now that things are much more calmed down with   Tristan I have kind of assumed no one was really interested in talking to me   because throughout all we were going through only ONE person called me   regularly to check and see how we were doing. And we got a call maybe once a   month by one or two others. I understand because we all lead busy lives, but   please don’t make me feel guilty or like a bad person simply because I truly   didn’t have time to talk but instead remember that obviously neither did you   because although my phones receives calls, I never got any. The past two   years have been loneliest I have ever had. We were in a new home, with no   local friends, no church we belonged to, and a very sick child. I can count   the number of visits people have made on two hands-and only 9 people (5 of   them only came up once) ever visited us during our 4 hospital stays (which   totaled over 110 days) -except for when T was first admitted. So the support   hasn’t been rolling in. It has been hard and lonely to do it all ourselves but   we have truly appreciated all the prayers so please don’t think we   don’t…but it would be nice for someone to come over just to give a hug!

With that cleared up I would like   to address something else. I am VERY aware that we live in an extremely nice   home in an extremely nice neighborhood. It wasn’t an accident we chose this   home. We loved it, we still do but the fact is we signed papers on the house   BEFORE Tristan was born, BEFORE we knew about his heart, BEFORE I had to   close my business and could no longer work, and BEFORE we realized we would   lose close to $3000 per month in income! So when we got this house our being   able to afford it was NOT an issue. We are more aware than ANYONE how   devastating our financial circumstances are, as we have struggled daily. I   have NEVER discussed fully what we have been through but to make matters a   little more understandable I will now. We are going to lose our home-unless   some miracle happens. We have had to surrender two vehicles in order to make   ends meet; I know some may ask well why not move, well put simply it isn’t   that easy. Not only do we have to keep in mind how much it would cost us to   move (until recently, although that just fell through- we had no way of   coming up with a deposit and a first and last month’s rent -which is required   anywhere) and although I won’t go into details, there are other   considerations as well. But despite how difficult it has been we have made   our house payments on time. We have not ONCE asked for anyone to give us   money nor have we received any-except twice as explained below. We have not   asked for assistance in any way to help us out whether with utilities or food   or anything else, there have been NO fundraisers at any time for T’s or our   benefit. Although we have never asked I don’t want to exclude the times we   have received help: our wonderful neighbors provided meals for us for a few   days after T’s second surgery and a church that knew about T sent a box of   food over for his first Thanksgiving. For T’s first Christmas my dad’s work   threw a party in his honor and raised some money. From that and with some   money given by 2 friends on behalf of their Bunko group was the only way we   afforded T’s 1st Christmas and gifts for our other children. We   have also received a few donations from others, mostly people we have never   met but each has been truly appreciated and has provided for our kids in some   way. All of these were unexpected and never imagined but we are eternally   grateful for.

I am not angry or upset nor do we   ever expect anything but I am hurt. So please don’t judge us because of   circumstances that HAVE BEEN out of our control. We do not spend money   frivolously as we don’t have any to spend. We don’t go on trips. We don’t go   to concerts. Sean and I don’t go on dates nor go do costly outings with our   kids. We can’t afford name brand or even off brand clothes for our kids. They   get hand me downs and deals I find on craigslist. They do have tons of toys   but remember I RAN A DAYCARE-so we had the toys before T was born.

Yes we did get extra money from a   side job last year but regardless of what anyone thinks we spent the majority   of it on past due bills and just trying to catch up, we did buy the kids’   Christmas-and we spent less this year than ever-aside from last year). We had   to use some of it to get a vehicle because we knew we could no longer afford   the one we had. We spent maybe 5% of it on unneeded things like getting take   out a few times and getting some stuff to help get organized and then the   rest went to taxes and groceries. We have spent more times in two years than   I can count trying to juggle the bills we have with the income we don’t. I   don’t always know how I am going to feed my children and many times I don’t   eat so they can. But I don’t complain and I won’t. Because despite all odds   and against medical reasoning, medical standards, and statistics our son is   alive and healthy and our other kids are doing great as well. But I CAN hope   for things to get better and for something to happen to turn things around, I   think I have earned that hope!

So regardless of what you think you know and despite   everything, we KNOW we are going to have to find alternate housing. I really   don’t need anyone making me feel guilty because of the home we are in now. We   KNOW we have to move but we don’t know HOW we are going to do it, we also   KNOW that we are going to have to move into something smaller and we have no   problem with that we are just trying to find something that will allow us   some peace of mind and room to grow and pray fervently we can find something   that we can stay in as our kids have been through more than enough. Briahnna   has sacrificed as well and has earned the right herself to not have to wonder   if she is going to have to leave her friends again.

After T’s upcoming surgery we can   start considering me working by doing a small daycare and I am beyond anxious   and excited… I want my kids to be able to play with friends and I want to   be able to help provide financially for our family but that’s a few months   out yet. So please don’t judge and assume all is well just simply because of   where we live now and because I don’t complain and beg for money constantly.

Again I am not angry or upset but   I am hurt. I have dedicated every year since Sean and I married but   especially the last two years to my family. It is not by accident that   Tristan is doing so phenomenally well. We have worked really hard to get him   where he is and to keep him healthy. To do that we don’t go on fun shopping   sprees or even window shopping trips, T has never been to the mall. We don’t   get to take a break and go to McD’s playland and play or any other play   place, Tristan has never been to an indoor play park of any kind. I don’t   just run to the store really quick if I need something, I wait for either   Sean or Bri to get home and then I go if Sean can’t and I still need it, T   has never been in a grocery store. He has never been in a church, he has   never been to family functions, nor do we take him to school functions, we   don’t risk his health just because I may be stir crazy or something sounds   really fun.. I limit my own exposure as well because it just isn’t worth it   to me/us to possibly bring something in and get T sick. I don’t judge or   think ill of anyone who does do those things we just feel that it isn’t in T’s   best interest to be exposed to those environments and risk his health and   because of that he hasn’t had any major colds and hasn’t been hospitalized   aside from his surgeries and caths. We have been very fortunate but we have   also been VERY careful!

Now don’t misunderstand, we by no   means live unhappily. We take walks, and we go to outdoor parks if the   weather permits and there aren’t a lot of kids, we go to the zoo, or other   outdoor activities. We try to do fun things as a family. During the summer   there are tons of things we can do-the winter it is a bit harder. We do go to   the farm occasionally as long as no one there has been sick. Ella is mostly   limited to what is safe for T but Bri gets to do quite a lot with her school,   church, and other stuff.

I am not writing this intending to   make anyone feel badly or even to get sympathy. But after a couple of   conversations I feel I needed to explain what our life has really been like.   Not what those may assume it is like or even possibly been told its like.

I have been in constant tears and   heartache especially the last couple days-well weeks really and this is the   only way I could think of to clear the air. Whether anyone actually reads   this or even cares is secondary. In fact, I am sure those that need to read   it won’t but I have explained with hopefully a little more detail than we   have given in the past what our life is like so that maybe some can   understand….

Thank you all for your constant   prayers for Tristan, please do not misunderstand and think they are unneeded,   unappreciated, or unwanted because they truly mean the world to us!

We still continue to be grateful   for all the blessings we have received. God has truly been with our family

Thanks again for any support   ~Christy

5/31/2012

‎Wednesday, ‎June ‎06, ‎2012, ‏‎7:17:32 PM | smolby@gmail.com (Sean Molby)

Okay,   so sorry I am just now getting this out; but we all have been sleeping for   the better part of two days, LOL.. since I didnt sleep at all Monday night,   and Sean didnt get very much himself, and being so stressed and worried   Tuesday, it took its toll.. we got home Tuesday around 4pm and T and I went   to bed and slept til 8pm. Got up and scrounged for food then went back to bed   around 10pm and slept til 10am.. T ate a HUGE late breakfast, finally got his   appetite back, and then went back to sleep for another hour and then stayed   up til bedtime…Tristan Molby is doing great, pretty much back   to his normal self, doing everything he used to but just sleeping a little   more but I think all the anesthesia has finally worn off! We wont hear back   from Dr Kaine til either next week or the week after.They will present Tristan at the Friday cardiology conference and then   discuss the next plan of action. Kaine said the Fontan will either be this   summer or they could push it back as late as early next spring; but only   because he isnt quite the ideal weight.. the optimal weight is 15 kg (33   pounds) and T is 13.9 kg.. but he still has a couple months of summer to   gain. Then they will weigh in the risks and benefits of doing it this summer   vs. waiting a few more months…
so for now we wait. But thankfully T is doing phenomonally well!! He is such   a trooper! 🙂 Thank you everyone for all your prayers and support. It means   the world!!!

Pre-Fontan Cath 11:00

‎Tuesday, ‎May ‎29, ‎2012, ‏‎11:09:48 AM | smolby@gmail.com (Sean Molby)

We   just talked to Dr. Kaine, No intervention was needed!!! He is doing great,   his left Pulmonary Artery was a little smaller than his Right, but is   profusing his left lung well! so they are not going to work on it. They will   present Tristans case at confrence within the next two weeks and discuss a   date for his Fontan. Dr.   Kaine said that Tristan is one of their poster childeren for HLHS kiddos with   the Hybrid preceedure! We   should get to go home today 🙂 I will follow up later, thank you for your   prayers!!!!

Pre-Fontan Cath 10:24 am

‎Tuesday, ‎May ‎29, ‎2012, ‏‎11:02:05 AM | smolby@gmail.com (Sean Molby)

Just   recieved word that they were done and Dr. Kaine will be in here to discuss   the outcome in 30 minutes! Wow that was fast! Hopefully that means no   interventional work needed. Stay Tuned…..

Pre- Fontan Cath Day

‎Tuesday, ‎May ‎29, ‎2012, ‏‎10:22:43 AM | smolby@gmail.com (Sean Molby)

T   is finally back in the cath lab… There were several delays -for some reason   they didn’t have a nurse to check him in, then everyone came at once so we   had me, Sean, T, Dr Kaine, the cath lab nurses, the charge nurse, anesthesia,   plus a couple of Dr’s that wanted to stop in and see T all in a little 7×7   room…with everyone talking at once (that was interesting)!! then they   forgot to order his Versed, and then we had to wait for it to take effect   (Sean has a hilarious video) but T was in good spirits and acting all goofy   when they wheeled him back…
Now we wait

Cath on Tuesday May 29th

‎Tuesday, ‎May ‎29, ‎2012, ‏‎1:31:07 AM | smolby@gmail.com (Sean Molby)

Hello   Friends, Sean Molby here and I am once again requesting prayer for my son   Tristan Molby, He is an amazing little boy with HLHS and is scheduled for a   heart cath this coming tuesday. The power of prayer is amazing and I firmly   believe that without it, Tristan would not be here today. The Cath is in   preperation for his third Staged Surgery called the Fontan and this will be   performed in the coming months. Please add Tristan to your prayer requests   also please share/repost on other prayer boards and as always thank you and   God Bless. ~ Sean Molby

~A Celebration of Life!!! Happy Mothers Day

‎Sunday, ‎May ‎13, ‎2012, ‏‎10:58:00 AM | smolby@gmail.com (Sean Molby)

Today is a celebration of life,   Tristan has overcome all odds and continues to thrive! I would like to   dedicate this post to my amazing wife Christy Molby, without her commitment   and sacrifices I firmly believe that Tristan would not be in the same   condition as he so happily is right now!!!! We LOVE you MOMMY!!! If your   reading this today (Mothers Day) then please take a moment to celebrate life   with your mother, your family and remember to take nothing for granted, as we   so often do. I love you all and God Bless!!!! ~Sean Molby Please check out the main page, I   have updated with a new photo album of Tristan’s “First Two Years”   and please play the Brad Paisley You Tube video “It’s a Hard Life”   while viewing the photo album. (scroll down for the video)

01-17-12~here’s to Unanswered Prayers!

‎Tuesday, ‎January ‎17, ‎2012, ‏‎11:51:02 PM | smolby@gmail.com (Sean Molby)

sorry   for not getting this up Sunday as I intended Where   to begin……. ­­­­After   over 6 months, and an amazingly miraculous 6 months at that, I am not really   sure. There has been so much that has happened. Currently I am laughing and   crying. Sounds silly I know but there is a reason. Anytime I do a new post, I   generally reread my last one so as to not repeat what you already know- and   yes I know I still repeat things J but it had been since last June for our   last update so I really wanted to refresh my memory of all that has happened   AND… well after reading it, I cried. It sometimes astonishes me that that was   our very own life; it seems so unimaginable, even though we lived it! I can   only laugh that I am crying over it. AGAIN! That last June post is going to   be a hard one to top so I am not going to try. LOL BUT I will let you all   know what has been going on

I   guess first off I can start with T is doing beyond incredible, the   advancements he has made in such a short time are mind-blowing. In fact, I   remember sitting at the computer last year at this time trying to stay positive   and optimistic and that wasn’t always the easiest thing to do. It is hard to   watch your child that you love so much need so much help because he was   literally helpless.

From   last January to June T had made huge strides.

But   from this past June to now he has made not strides but entire continental   leaps, LOL… there just isn’t anything this kid can’t do, except for maybe   never give up!! He has such personality and is just an amazement to watch   daily. J <insert loud sigh> I still worry and I am still scared but I   am also still incredibly proud!! J

Last   June T had just learned to crawl and he spent an entire day practicing (on   his own and by himself, might I add) learning to stand by himself… It was   the funniest thing ever to watch especially since he refused any and all help   I offered. But after about 4-5 hours he was a pro and after that it took him   less than a week to figure out how to walk by himself- remembering back it   was hilarious to watch him because he wouldn’t take small tenuous steps, like   one might think! Nope he wanted to get in as much as he could as fast as he   could- he was making up for lost time!! So once he balanced himself he would   take off in a complete sprint to get as many steps in as he possibly could   before falling flat on his face- and then he would sit up with the most   amazing grin on his precious little face. He was doing it his way, and he   thought his way rocked!!!

By   then end of June he had the walking thing down and of course that wasn’t   enough so he just kept at it… I could go week by week and month by month   for the past 6 but I will just summarize by saying he has definitely   conquered being a toddler!!!

He   walks, runs, jumps, climbs (ON EVERYTHING), slides (off anything he can   before he gets in trouble: i.e. couches, stairs, chairs, beds-LOL the list   goes on). He dances (his all time favorite thing to do), he climbs the stairs   by himself (I always walk behind him), and he can go down them himself (but I   never really let him). He signs, talks, sings, and yes screams!! J. He has   such a personality and loves it most when he can make you smile!! He is the   biggest little daredevil! Nothing scares this child! AND HE LOVES to do   anything that a mommy would deem dangerous!!!

He   is finally just your average normal little 22 month old boy-with the   exception of having only half a heart!!

But   what a heart it is! Dr. Kaine has been brought speechless with all that T has   accomplished! The little baby boy that no one thought could; has managed to   baffle em all!! But even T has his limits and those include the need for his   upcoming procedures. L Kaine has pushed things back as long as he was able   but T will have to go in this up coming April 19 for his first medical   procedure in what will be 17 months, a heart catheterization and then a couple   short months later (hopefully) he will have his final staged procedure, the   Fontan. It will be T’s fourth heart surgery and I am SCARED TO DEATH!!!

Right   now T is doing beyond great! He is right where he is supposed to be or even   past! He is in the 50% for height and weight -almost 30 pounds and nearly 3   feet tall (27 lbs 4 oz and 33 inches long those measurements where 3 ½ weeks   ago). He is where he needs to be on all the charts for OT, PT, and speech!   And he has the most AMAZING personality EVER!!!

So   it is very scary to think of all that we can lose by even just one tiny thing   going wrong… This time for surgery I am not handing over my sick baby boy   hoping they can make him better. This time they will be taking my perfect   little warrior and I can only hope and pray that no one screws him up! Its   not that I don’t have faith in his Dr.’s I absolutely do. If I didn’t we   would be traveling 100’s or even 1000’s of miles to other Dr. It is just   there are so many variables and so many things that can happen. And that is   scary…just scary!

But   we are all holding on to the hope that T has made it through so much and   overcome things that most can’t even imagine so he will make it through this   next step too!!!

The   next few months are going to be very hard for us. Preparing yourself to hand   your child over to basically strangers, knowing that they will be doing a   procedure on his heart is not something you can come to terms with or even   really accept but for us it is just something that is… I have never been   allowed back with Tristan when they are prepping him for a procedure but   since meeting other heart families I have learned that other hospitals allow   a parent to be there until the anesthesia has taken affect and that is   something I plan on discussing with them. I honestly don’t think they are   going to get him out of my arms any other way… His last surgery the nurse   literally had to peel my arms from around him, and as she did I felt like she   was ripping my heart from my chest. Letting him go was so hard and this time   it will even be worse and to be honest I don’t think I will be able to do it   the same way we have before so hopefully they will allow me to walk him back   and stay until he falls asleep-please pray that they do!

On   a side note (kinda)

I   recently was talking to my grandma, just about life in general, and she   reminded me of some things that happened when I was younger and how back then   she had refrenced one of Garth Brooks songs “Unanswered Prayers”.   When she spoke to me decades ago she said how sometimes God answers your   prayers in ways you will never understand, maybe not until many years later,   or you may possibly never get to understand them in this lifetime. And I   didn’t understand then! But my grandma was right, as was good ol’ Garth.J My   point of this is, it got me to thinking that whenever you are pregnant and   people ask what do you want, a boy? or a girl? Most answer I just want a   healthy baby… In fact, that is how I answered! “I just want a happy   healthy baby, it would be nice to have another boy, but I will be happy with   either”. When T was diagnosed, I thought my prayers had not been   answered…and at the time I couldn’t imagine why God would do that to us..to   me, hadn’t I already been through enough in this life? But it has been over 22   months and as I look at Tristan I realize.. my prayers WERE answered. No,   maybe not exactly as I had planned it out; but I DO have a beautiful and   healthy baby-he just has only half a heart, but with that half he has shown   us how to live with all of ours…I love him more than I could ever   imagine… I love all my kids. I love them equally. But Tristan has finally   made me whole! If he had been born differently I would not be who I am today.   Nor would Sean or the girls. He has taught not only us but countless of others..   he is our Unanwered Prayer!

For   now we are going to keep on as we have for the past several months. Enjoying   every moment and each and every smile and all the orneriness that comes with   em J

I   would greatly appreciate it if everyone could please continue to keep T in   your prayers. Although he is doing amazing he will never stop needing all the   love and support that everyone has offered! Thank you all so much

Hugs   to you all~ ♥Christy

Status Archive 2011

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